Meet Amy
Meet Amy: She is a stellar writer, loves her cat, and is working on a degree in Sociology at Colorado Mesa University. Her voice will change you. Her story is worth your time.
A little bit about myself: I was born without legs. My left
leg goes all the way to where a normal foot should begin and then my right leg
goes to about where a knee would be. With that, I was born with a syndrome
called Moebius. It is a difference that affects the 6th and 7th
cranial nerves in the face and comes with a lot of facial paralysis. A lot of
people who have Moebius cannot move their tongue, their eyes in a horizontal
direction, they may also have a hard time communicating or speaking, they may
have swallowing issues and just some general difficulty with the function of
the face. It’s like a permanent Botox, so there you go.
I was actually born with the inability to smile which was
also because of Moebius. In 1999 I had a surgery in Toronto, Canada that
allowed me to smile. I had to go back twice. They took a muscle out of my right
leg and put it in my face. Then they took a muscle out of my left leg and put
it into the left side of my cheek so both sides have a muscle that help me to
smile. It’s not automatic. I have to think about doing it. For you guys, when
you’re happy, when you laugh, it comes automatically. It doesn’t come
automatically for me, I have to think about it.
I joined VLFA in 2015 as an intern and in 2016 I moved up
officially to Program Assistant, which is what I do now. We are working towards an inclusion campaign
with our motto that everyone has a story. So right now, if you don’t mind, I am
going to share one of my stories with you. It’s pretty random but pretty funny.
I had put it on FaceBook on June 29, 2016:
A guy who works at Walmart approached me while I was with my
mom, walking away from the carts. The employee says, “Miss, do you need an
electric cart (meaning mobility assistance)?” Meanwhile, I was wearing shorts
and he could see my prosthetics. I replied, “No, thank you. I like walking….Oh,
and also, I like to work out too!” My mom smirked after I said this. Ok, I know
that may have been rude and conceited but it was so much fun to say! So my hashtag with that was
#killthemwithkindness. Ya know, the other thing, I was reading my comments on
the page and I said that I could have been upset but I chose not to be. This is
what I’ve heard my entire life. And some people they just don’t know. They
don’t know what to say, they don’t know what to do and so they don’t even want
to approach me. It’s just good that I can use my power and help advocate. I
have learned that getting upset about the situation actually makes it worse.
Join the conversation. We
want to hear YOUR voice.
How can strangers approach
you in a way that makes you feel respected?
Valley Life for All, A
Non-Profit.
Reach us at: 970-319-1279
#valleylife4all
#voiceability4all
Resources:
Comments
Post a Comment